October 12 Late Evening Update

Hello folks,

There is not much new to report here tonight. They are waiting 24 hours to put food through the peg feeding tube, I think this is standard procedure. And I'm not totally sure they are saying peg, but I definately know it ain't pez, so if I'm mispronouncing...sorry.

Dad still hates the respirator and decides to get a little hyper about it from time to time. When we try to help right now he just looks disgusted like we should be helping him rip out tubes. I understand his agitation as I'm sure its not much fun having a tube shoved down your throat, so we just let him have a fit and try to keep him calm.

We haven't heard any news on the ammonia levels and are just hoping and praying those are going down.

Please know that your prayers are helping. Although this is a slow process right now, we are trying to remember that God doesn't always work on our time schedule. I sent up a "thank you God" this morning after I saw that dad was atleast feisty enough to get mad because that is way more than yesterday! AND he did smile at me and it rocked my world for a moment.

Please keep praying for us! We appreciate you all SO very much. My mom is very discouraged today and a little worn out so maybe send up an extra prayer for her too. Thank you for caring so much about my dad and my family. I feel selfish sometimes asking you to invest so much time for me and the family, but I know you love us, so I'm going to take advantage of your kindness and consideration for as long as possible.

Love,
Cejae & family